Torey's Distraction (2009)

What if you gave birth to a child with a rare genetic defect? Would you let nature take its course or would you do all you could to give your child a normal life? Recent medical advances are saving the lives of children born with Apert Syndrome, but to live a normal life one must look normal and this is where the journey of Torey's Distraction begins. Chronicled over a period of 10 years, the film follows Torey, Emily and Saige - all children born with Apert Syndrome - a rare genetic condition that causes craniofacial anomalies and skeletal mutation. Blood's directorial debut provides an intimate glimpse into the transforming powers of science, family, humor, hope and compassion.